May 21, 2018 -

ALS patient Sarah Benoit, 36, finds it difficult to comb her hair due to her condition at her home in San Bernardino, Calif. on Wednesday, May 16, 2018. Benoit faces a conundrum of being caught between the $145,000 price tag for a new ALS drug, which the FDA endorsed last year for ALS patents, and repeated insurance denials that conflict with the approval. (Photo by Rachel Luna for STAT)