Beacon Falls male leads ALS quarrel in respect of late mom, hosts kickball tourney
July 12, 2016 - als
A internal male is stability his idea of kicking a debilitating ALS — also famous as Lou Gerhig’s illness — to a quell with his 4th annual Valley kickball tournament.
Ryan Matthews of Beacon Falls knows firsthand how a illness can impact families, carrying mislaid his mother, Susan Matthews, to ALS in 2011. Matthews’ mom was diagnosed in 2009.
The degenerative engine neuron commotion takes differently healthy, physically able individuals, and slips them into full physique paralysis, Matthews said. ALS patients are approaching to live usually an additional dual to 5 years after their diagnosis, pronounced Matthews, who serves as executive executive of The Susie Foundation, that he founded in his mother’s honor.
“It was a transformative impulse for a family,” pronounced Matthews, 28. “My mom indispensable around-the-clock caring commencement during a really early stages of a disease, which, during times, presented clearly indomitable challenges. But, we were propitious to have an impossibly supportive, loving, and dedicated network of family, friends and village caring providers to assistance us along a way.”
The Matthews family perceived an strenuous escape of adore and support following Susan’s death, that Matthews pronounced encouraged him and a family to continue their work in support of homebound ALS patients and their families.
Matthews pronounced ALS affects as many as 30,000 Americans and, here in Connecticut, there are some-more than 250 people now vital with a disease.
“The Susie Foundation’s idea is simply to strap a practice with ALS to move assistance and wish to those patients and families now vital with a disease,” pronounced Matthews. “By pity what we know and honoring my mother’s legacy, we’re anticipating to make life only a small easier and some-more suggestive for all those folks who find themselves — or find a desired one — confronting an ALS diagnosis.”
To date, a Susie Foundation has lifted some-more than $50,000, and Matthews pronounced 100 percent of a income has left toward providing financial support to internal families struggling in a face of ALS. The foundation’s extend module has helped families equivalent a costs of home alteration projects, including assisting make homes some-more disabled accessible, providing in-home health caring assistance, installing unstable electric generators in sequence to forestall energy outages from interlude life-sustaining ventilators and countless other profitable projects that helped keep internal ALS patients during home and vital comfortably, according to Matthews.
To assistance support those efforts, a substructure is usurpation registrations for a 4th annual Susie Classic Kickball Fundraiser scheduled for Aug. 6 during a Beacon Falls Recreation Complex, 100 Pent Road, Beacon Falls. Team registration will start during 9:30 a.m., with opening ceremonies during 11 a.m. followed by a contest during 11:30 a.m.
People ages 16 and adult meddlesome in participating can register on a foundation’s website during thesusiefoundation.org. Cost is $30 per chairman if purebred by Jul 31; $35 if purebred by Aug. 5; and $40 for day-of registration.
Matthews can be reached around email during TheSusieFoundation@gmail.com for additional information.
Matthews thanked this year’s sponsors, that embody Employers Reference Source Inc. of Waterbury, Frankie’s Family Restaurant of Waterbury, Beacon Falls Parks and Recreation Department, Ion Bank of Naugatuck, Wing It On! of Waterbury, Triple Stitch Promotional Products of Prospect, Powerstation Events of Cheshire, 66 Church of Naugatuck, East Coast Overhead Door of Milford, Always Smilin’ of Hartford, Beacon Falls Pharmacy and Gabe’s Service Center of Beacon Falls.