Fundraiser to advantage internal ALS patient
June 26, 2016 - als
AUSTIN (KXAN) — A family fun night fundraiser Monday will assistance a internal man pay bills as he fights ALS.
Jay Smith was diagnosed with Lou Gehrig’s disease, or ALS, in Mar 2014. Instead of vouchsafing it delayed him down, Smith used a diagnoses as a approach to lift recognition about a illness that attacks a body’s haughtiness cells.
With a assistance of family and friends, Smith lifted $200,000 for ALS investigate and determined a free classification called Every 90 Minutes.
“Our idea is to support Jay and his mom and his family each day, and suffer a gifts that he still presents us with,” Jay’s father Gene Smith said. “He’s still full of fun and humor, and he still creates fun of his father all a time, so we have fun together.”
Even with a work he’s finished to move courtesy to a disease, and a certain opinion he’s kept, fighting ALS is still costly.
“Very small of his caring giving is lonesome by his medical insurance,” his mom, Barbara Smith said. “The cost out of slot for an ALS studious is about $120,000 a year.”
Smith’s parents, creatively from a Philadelphia area, changed to Austin to assistance their son after his diagnosis. But they pronounced they weren’t certain what kind of response they would get when they started seeking for help.
“Barbara’s been out knocking on doors, I’ve been out knocking on doors…and we contingency tell you, a response has only been incredible,” Gene said.
Jay’s mom pronounced they are elegant of all of a assistance they’ve perceived from people in Austin.
“We’ve perceived extensive support from a Spicewood community,” she said. “These are people that we’ve never met before and all of a remarkable we have thousands of friends in Austin. They’ve been so, so generous.”
The income lifted during Monday night’s fundraiser will go to a trust account that will assistance Jay and his family compensate medical expenses.
About 350 people are already purebred to attend a fundraiser, that will be during Balcones Country Club from 6 p.m.-10 p.m. The family fun night will embody food, a wordless auction, kids games, swimming and live music. Tickets to a eventuality are $10 for kids, $25 for adults or $60 for a family.