George Smith: The good thing about ALS
May 23, 2018 - als
I know it sounds odd, though a lot of good things are function since we have ALS. And as a illness progresses, we am deeply beholden for a good things that are happening.
Friends hosted a “Roast and Toast George Smith” eventuality one dusk during a Senator. Lots of humorous stories were told, and friends came from all over a state, some of whom we hadn’t seen in many years.
Two days after Linda and we were invited to a Maine Senate where, shortly after a morning event opened, about a dozen senators got adult and pronounced good things about me. we joked after that it took me 40 years of lobbying there, though finally they pronounced something good about me. Honestly, a speeches were generous, holding me behind by some good experiences.
Two weeks ago a children and grandchildren hosted a prolonged weekend in a Lafayette Ocean Resorts oceanside cabin in Wells. Wonderful doesn’t start to report it. we generally desired son Josh’s story of how, only before he and a 3 year-old granddaughter headed to Maine so we could horde a 4th birthday celebration for her in April, Ada said, “Dad, we know your father is a genuine jokester! Be careful.” Boy, she got that right.
We’re perplexing to spend lots of time with a 4 grandchildren. The boys, who live in Union, are really active, generally in sports, so we mostly see them during games. I’m disposition heavily on them, however, to do some fishing this summer with Grampy.
We’re operative to seaside adult a home. All Season Roofing of Augusta did a glorious pursuit of putting a new roof on a house, and Goodwin Well Water of North Turner spotless a critters out of a good that had, for a integrate months, fouled a good water. We toasted them with eyeglasses of splendidly purify good water.
We’re also propitious to live in a really caring village where lots of assistance and support is available. Our church friends are also fervent to assistance us.
I’ve been doing lots of investigate on adaptive equipment, vans, and other needs and issues. ALS is an costly illness, though there is a good array of nonprofits who are assisting ALS patients. The best has been a ALS Association’s Northern New England Chapter. Nell Davies, who was a outrageous assistance primarily as a group’s Maine staffer, has now retired, though they’ve hired another smashing and really gifted replacement, Laurie McFarren, who fast stepped adult to give us lots of advice, information, and help.
For example, a organisation maintains a storage section in Brunswick full of things to loan ALS patients. Laurie granted us with dual wheelchairs, one of that is really light, and both of that overlay adult for ride as we travel. And yes, Linda and we still wish to transport — though we’ll do it right here in Maine, enjoying a favorite places, including Monhegan and Lubec.
The ALS Association is heading a quarrel to provide and heal ALS by tellurian investigate and national advocacy. I’ve been desirous by a smashing people operative for this classification and motionless to assistance them lift money. The ALS Association’s dual vital fundraisers in Maine are walks in Bangor and Portland.
This year a Bangor travel is scheduled on a morning of Aug. 25 and a Portland travel on a morning of Sept. 8. My sister Edie, who works for Sen. Angus King, will chair a Bangor walk.
I am anticipating we will attend in one of a walks. You can get some-more information and register for a Bangor travel during www.web.alsa.org/Bangor2018 and for a Portland travel during www.web.alsa.org/Portland. If you’d cruise being a sponsor, let me know and I’ll send we information about that.
I was generally gratified when Martin’s Point, my insurer, concluded to be a sponsor, as did a Portland Press Herald, that will give a walks lots of publicity. Other sponsors embody Moody’s Collision Center and Poland Spring, that will supply H2O for all walkers.
As my illness progresses, with copiousness of problems ahead, all of these good things are generally critical to both me and Linda. we wish to see we during one of a walks.
George Smith can be reached during 34 Blake Hill Road, Mount Vernon, ME 04352, or [email protected]. Read some-more of Smith’s papers during www.georgesmithmaine.com.