Glencoe grad with ALS hopes to see new ‘Star Wars’ film during home
December 13, 2015 - als
Those are his difference digitized by Eye Gaze Technology in a video constructed by his friends and family in a debate that has left national to concede Nathan to see a new film recover during his home in Tennessee.
Nathan, 34, and Kathleen — his mother of 5 years — grew adult in a Gadsden area. The integrate now live in a Nashville area. Nathan is a 2000 connoisseur of Glencoe High School, and Kathleen is a 2002 connoisseur of Westbrook Christian School.
Nathan was diagnosed with amyotrophic parallel sclerosis (ALS) dual and a half years ago.
ALS, also famous as Lou Gehrig’s disease, is a on-going neurodegenerative illness that affects haughtiness cells in a mind and a spinal cord.
Nathan’s friend, Josh White, pronounced he and other friends and family are anticipating to widespread a word about Nathan’s wish to see a “Star Wars” movie, “The Force Awakens,” from his home.
“Nathan has always been, and still is, a stand-up man that everybody has loved,” White said. “He was diagnosed with ALS a few years ago, and it has been surpassing fast given then. Even so, he has kept a certain opinion and desirous so many others around him.”
White pronounced his friends and family are not seeking people to present money.
“We’re only seeking people to review about this and watch a video and hopefully share them so that we can assistance extend an amazingly smashing chairman a final wish,” White said.
The video shows Nathan, now in his sanatorium bed, incompetent to speak, though means to promulgate by a Eye Gaze Technology on his computer.
In his digitized words, he explains about pain to his unbending joints and how formidable it would be to lay in his wheelchair by a length of a movie.
In further to a pain, his mother pronounced he has a tracheotomy that has to be suctioned several times a day. She explains that it takes anywhere from 5 mins to 45 minutes, so even from his wheelchair, it would not be unsentimental for him to go a film museum since he would have to be taken out to be suctioned so it doesn’t disquiet others.
“To be means to watch it here during home, in bed, would be so most some-more comfortable,” she said. “‘Star Wars’ is only one of a things that creates him happy. We’d like to move that grin back.”
The film will eventually come out on DVD and Blu-ray, though that competence not be shortly enough.
“We only don’t know how prolonged he has,” she said. “We were going to grow aged together … that was a plan.”
Through digitized communication, Nathan pronounced doctors have told him a illness is 100 percent depot and he has dual to 5 years to live.
“I’m not usurpation that,” he said. “I trust we am going to kick this or during slightest make it until a heal is found.”
Kathleen pronounced it competence sound stupid for something like a film to be so important, though it would meant so most to Nathan. As a child, he would use flashlights as light sabers.
Since a integrate has been married, she has had cancer that compulsory medicine and radiation.
Through that experience, they schooled to stay positive, she said.
She pronounced a illness started with a baggy in his left feet and he suspicion it was a steel-toe boots he was wearing during work. When it didn’t get better, he went to a doctor, who diagnosed ALS rather quickly.
“The day we was during my appointment and dynamic one-year transparent from cancer, he was during a appointment removing diagnosed,” she said. That was dual days before Nathan’s 32nd birthday.
Just a year ago, Nathan was means to pronounce and explained some of a woes of ALS.
He pronounced a best approach he can explain is like being a child during an entertainment park and his father revelation him it’s time to go home, though there are some-more rides to ride.
“That’s a best approach we can put it. I’m not prepared to go yet,” he said. “There’s still a lot we wish to do.”
There is a Facebook page, Walking by Faith for Nathan Ashley.
Also use #TFAForNathan.