Hoffman Estates local fighting to find ALS cure
July 3, 2015 - als
Dan Saunders was ravaged a year ago to learn he had ALS, and he struggles daily to change a light detriment of his autonomy with a enterprise to live any remaining day to a fullest.
The 54-year-old Hoffman Estates internal also is essay to assistance erase ALS as a genocide judgment for destiny generations.
Putt Out ALS
What: A golf tour benefiting a ALS Association Greater Chicago Chapter
Where: Hilldale Golf Club, 1625 Ardwick Drive, Hoffman Estates
When: 1 p.m. Jul 11
Cost: $125 per golfer
Format: Two-person teams, best round rules
Information: Call (847) 882-8652 or email PuttOutALS@gmail.com
That bid comes to his favorite internal golf course, Hilldale Golf Club in Hoffman Estates, on Saturday, Jul 11, for a Putt Out ALS fundraiser. Proceeds will advantage a ALS Association Greater Chicago Chapter.
“It was unequivocally my golf buddies,” Saunders said, singling out Dave Trunda of Algonquin for special honors. “They came adult with a idea.”
Saunders anticipates a bittersweet knowledge assembly adult with aged friends on a march where he played for 22 years, and that he lived subsequent to while attending Hoffman Estates High School with his destiny wife, Ann.
Saying goodbye to golf was one of a hardest tools of his early months of vital with ALS final year. But before he did, he distinguished his passion by visiting a worshiped St. Andrews golf march in Scotland.
Each ability he’s mislaid — golfing, driving, walking — has brought him behind to a initial fear of his Jul 2014 diagnosis.
“It didn’t strike me until we started losing capabilities,” Saunders said. “Falling on a golf march was unequivocally tough.”
This is a second time a comfortless illness has influenced Saunders’ family. His mother-in-law died from ALS 6 years ago, usually dual years after being diagnosed during age 80.
For Saunders, it began with flesh spasms in a tumble of 2013. He during initial suspicion those were side effects of a cholesterol-lowering remedy he was taking. But even when he stopped holding a medication, a symptoms continued.
By Mar 2014, his left feet was boring and not gripping adult with a right. That began a scarcely four-month routine of diagnosing a problem. ALS is diagnosed not by a singular exam though by expelling each one of several other possibilities first.
ALS, or amyotrophic parallel sclerosis, is a on-going neurodegenerative illness that affects haughtiness cells in a mind and a spinal cord. The normal life camber after diagnosis is dual to 5 years. Less than 10 percent of those influenced live longer than 10 years.
As decorated in a 2014 film “The Theory of Everything,” famous fanciful physicist Stephen Hawking has lived with ALS for some-more than half a century. But his instance is so singular that probably no one diagnosed with ALS hopes to impersonate it, Saunders said.
Nevertheless, Saunders insists that a illness is not incurable, usually underfunded. The reason diagnosis and a heal are still so distant off is that even a means of ALS has not nonetheless been determined, he said.
Saunders initial began lifting income and recognition for a quarrel opposite ALS after his mother-in-law was diagnosed, and he’s continued a bid given he schooled he, too, was afflicted.
On May 30, Saunders’ team, Dan’s Determinators, was a tip fundraiser during a ALS Association’s Walk to Defeat ALS during Cantigny in Wheaton with a final total of $52,264.
Putt Out ALS starts with a shotgun start during 1 p.m. Saturday during Hilldale Golf Club, 1625 Ardwick Drive. Though a eventuality already has 100 golfers participating, Saunders wants to sell out all 144 tickets.
The cost per golfer is $125, that includes 18 holes of golf with a cart, a acquire gift, pre-round lunch and smorgasboard dinner. Additional events embody golfing contests such a $25,000 hole-in-one contest, a 50/50 raffle, wordless and voice auctions, and a ALS ice bucket challenge. Online registration was scheduled to tighten Friday, though Saunders pronounced a eventuality also will acquire people induction during a march on a day of a event.
Though Ann says her father is traffic with a illness amazingly well, confronting a universe with his common upbeat attitude, a contention about his struggles causes him to mangle down a few times.
“It’s tough to speak about myself,” Saunders said. “I have no problems responding any questions about a disease.”
The couple, who have a 22-year-old son in his final year as an undergraduate during Indiana University, lived in Deer Park until recently, when they changed from their three-story home to turn a neighbor of Gov. Bruce Rauner in a some-more permitted condo building in downtown Chicago.
As lifelong suburbanites, a integrate have copiousness of certain things to contend about their new life in a city. Apart from chatting with a administrator walking his dog, or assembly Mayor Rahm Emanuel during a loyalty of Maggie Daley Park, they frequently attend live theatre productions like “On Your Feet!” a story of Emilio and Gloria Estefan, during a dump of a hat.
“There’s always something to do,” Saunders pronounced of life in a city. “It’s action-packed and fast-paced.”