How an Emory researcher benefited from a ALS Ice Bucket Challenge
January 8, 2015 - als
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You dumped ice on your head. Project MinE got cold cash.
Last summer, as millions of people worldwide posted Facebook and YouTube videos of themselves holding partial in a Ice Bucket Challenge in a name of lifting supports and recognition for amyotrophic parallel sclerosis, or ALS, skeptics wondered if all that amicable media hype would interpret into something tangible.
Short answer: Yes. The plea lifted $115 million for a ALS Association, that in Oct announced initial grants of roughly $22 million to researchers, including Jonathan Glass, who leads a Emory ALS Center.
Glass is one of a U.S. investigators for Project MinE, an general genetic investigate module that will accept $1 million in supports lifted by a challenge. Glass, a usually internal researcher concerned with MinE, says he’d requested supports prolonged before anyone posted ice bucket videos. “We had put a extend into [the ALS Association] behind in May, before anybody had finished a Ice Bucket Challenge,” he says. “It’s an huge plan that requires mixed countries, mixed investigators, and it’s going to be very, really expensive.”
Although Glass wasn’t astounded his module got a funding, he was repelled during a success of a swampy fundraiser itself. “What was smashing was that it was grassroots. What it’s finished is lift recognition for a illness that is comparatively rare,” he says. “In terms of a campaign, it was only extraordinary. We have money; we have awareness.”
Of course, Glass and his group all achieved a challenge. “Even my mom did it—and she’s 87 years old.”
Fast facts: Project MinE
- The plan is operative to map a DNA profiles of 15,000 people with ALS to review with a profiles of 7,500 control subjects.
- 13% of a profiles—2,808 to be precise—had been collected by Nov 2014.
- The study’s design is to brand genes that might change either someone gets ALS, when an particular gets it, how fast it manifests, and how a illness affects a body.
- The plan originated in a Netherlands and includes researchers in mixed countries, such as Portugal, Belgium, and Ireland. The name MinE comes from “mining”
- 2,500 (or 1,950 Euros) is a cost to finish one DNA sequence
This essay creatively seemed in the Jan 2015 issue.