Husband and wife’s ALS tour documented in new book
September 20, 2017 - als
Naperville clergyman Chris Benyo done a guarantee to his mother when she was fighting ALS, a scarcely five-year conflict she mislaid in 2016.
“One of a final things that Denise requested was that we write a book together,” pronounced Benyo, 52, of North Aurora. “She suspicion maybe a story could assistance someone else; she was a many unselfish chairman we have ever met in my life.”
“All In: Living, Not Dying with ALS,” a reverence to Denise DiMarzo, was expelled by Christian Faith Publishing in July.
It was Dec 2011 when doctors told them Denise had ALS or amyotrophic parallel sclerosis — also famous as Lou Gehrig’s illness — a on-going neurodegenerative illness that affects haughtiness cells in a mind and a spinal cord.
“We knew what a finish diversion was with ALS; we knew she was going to pass away,” pronounced Benyo, who teaches earthy preparation during Meadow Glens Elementary School. “They told us there is no cure, no diagnosis plan, and that they were sorry.”
Benyo pronounced during that impulse a newlyweds — married only 6 months before receiving a diagnosis — had a choice to make.
“We could die with ALS or live with ALS,” Benyo said. “By a beauty of God and Denise’s extraordinary faith, we chose to live.”
Denise was unequivocally open about what she was going through, and she shared her story in a blog over a subsequent 5 years. Benyo pronounced Denise confirmed a clarity of amusement by it all, and her blogs are a thoughtfulness of that.
“Her blogs were so entertaining,” Benyo said. “She was unequivocally a good writer.”
In further to writing, using was a passion for DiMarzo and Benyo and they didn’t let ALS put an finish to that.
“We were training (for a marathon) when she got a diagnosis,” Benyo said. “We indispensable to come adult with another devise so that’s what we did.”
Plan B was that Chris would pull Denise in a specifically designed chair for running, and together they participated in 8 marathons while lifting supports and recognition for ALS.
“Because of her we did a lot of good things,” Benyo said. “We could have shriveled adult though we didn’t.”
Benyo started a book shortly after Denise upheld away, and chronicled their story of adore and presence and, of course, running.
“It was a labor of love,” Benyo said. “There were a lot of tears (shed while essay it), though it was easy since it was so fresh.”
The book is accessible during Anderson’s Bookshop in Naperville, Barnes and Noble and online during Amazon.
Jane Donahue is a freelance contributor for a Naperville Sun.