Ice Bucket Challenge brings wish to Alaska lady vital with ALS
October 9, 2014 - als
Sharon Poston says she once had a whole universe in front of her. Now, that seems like a lifetime ago.
Two years ago, she was a singular mother, lifting her teenage son, when things took a spin for a worse.
“I knew something was wrong,” pronounced Poston, who has to use a mechanism to promulgate now.
She was diagnosed with Amyotrophic parallel sclerosis (ALS), or Lou Gehrig’s disease, and has been during St. Elias Specialty Hospital for a past 6 months.
ALS is a rare, lethal illness that affects haughtiness cells in a mind and a spinal cord. More than 30,000 Americans are vital with a illness in any given year.
“Even yet their mind is sound, what’s harmful about a illness is that all of their intentional flesh movements waste so they can’t move,” pronounced Dr. Leslie Gonsette with St. Elias Specialty Hospital. ”They can’t swallow, they can’t even breathe on their own.”
It’s solemnly holding a fee on Sharon, who breathes with a assistance of a appurtenance and speaks with a assistance of a computer.
“I could unequivocally stay in a pits if we focused on these things, after being active all my life,” Poston said.
Poston says she usually has one wish now: “To be home with my son that we love,” she said.
That’s not possible, however, since of a cost it would take to yield in-home care.
“Someone in her box requires all to keep her alive,” Gonsette said. “So this is not only once a day someone comes in and gives them antibiotics. This is someone who needs 24/7 care.”
The ALS Association recently lifted some-more than $115 million interjection to a Ice Bucket Challenge, an online fundraiser that went viral on amicable media.
Poston is anticipating some of that income could assistance her and others vital with ALS.
“I never wanted to go home so badly in all my life,” she said.
Oliver Ross with Alaska’s ALS section in a state of Washington says, unfortunately, a organisation can’t give a supports divided since it doesn’t have them. It has a tiny extend though not adequate to assistance Poston go home.
“The costs of someone going home, generally in Ms. Poston’s case, generally when you’re on a ventilator, need sum care,” pronounced Ross. “The cost of that can surpass $5,000 a month.”
So for now, Poston says she’ll keep fighting.
She’s set adult an online fundraising page and is now usurpation donations to assistance her get home.