Kennedy raises recognition for ALS
January 21, 2015 - als
Troy local Madeline Kennedy became an overnight internet prodigy after she rolled in a 77½-foot putt while holding partial in a fundraiser during a Worthington Country Club in Bonita Springs, Fla.
South Florida CBS associate WINK News was interviewing Kennedy, who resides in Brunswick when not spendng a winter as a sleet bird in South Florida, when she buried a longest putt of her life. The video went viral by amicable media.
Kennedy, who worked in a Collar City as a helper and after as a clergyman for 10 years during Sage College mentoring students to turn mental health nurses, is happy for a publicity, though not soley for her putt.
Kennedy was diaganosed with ALS — Lou Gehrig disease, given named after a New York Yankees Hall-of-Fame initial baseman who died from a illness during a age of 38, dual years after being diagnosed — in 2012. The solitary purpose of Tuesday’s fundraiser, Worthington’s FORE ALS Challenge, was to lift income and boost recognition for a illness that was initial diagnosed in 1869, though to this day does not have a cure.
ALS is a on-going neurodegenerative illness that affects haughtiness cells in a mind and a spinal cord. Motor neurons strech from a mind to a spinal cord and from a spinal cord to a muscles via a body. The on-going lapse of a engine neurons in ALS eventually leads to their death. When a engine neurons die, a ability of a mind to trigger and control flesh transformation is lost. With intentional flesh movement gradually affected, patients in a after stages of a illness might turn totally paralyzed.
More than 270 people participated in a golf apportionment of a FORE ALS fundraiser, and 250 took partial in a cooking and wordless auction. All a proceeds, some-more than $20,000, will be given to ALS Therapy Development Institute in Boston, that is deliberate a No. 1 non-profit investigate trickery for a disease.
“Lou Gehrig was diagnosed with this illness in a 1930s and 75 years after there continues to not be a cure,” Kennedy said. “There’s an whole new era of people who do not know about Lou Gehrig, who he was, what he did.
“As they say, ALS is not incurable, though it is underfunded. ALS is a progressive, dehabilitating disease. We’re anticipating to boost investigate to find a cure.”
Kennedy has copiousness of assistance with a fundraiser in Bonton Springs, located north of Naples of Florida’s west coast. She lives on a idea march in a Worthington village along with 14 other families who are members of a Country Club of Troy.
“I could not have finished this though their support,” Kennedy said. “I have a design of a 14 families, all from Troy. Trojans who live in Naples for a winter came adult to assistance out with a event.”
Kennedy is a former member during CC of Troy. She quiescent when ALC took her ability to walk.
“My electric transport is in Florida, so we don’t get to play in Troy,” Kennedy said. “I stop by to play overpass and see friends.”
She will spend a whole winter in Florida. Kennedy’s huband of 39 years, Mike, will also spend some time in a Sunshine State this winter. The family is now creation a transition to apropos full-time Florida residents. Kennedy will also perform her 4 children, Christopher, Jeffrey, Elise and Catherine, via a winter months.
Kennedy has a special electric transport to get around her village in Florida. The transport raises a seat, that allows Kennedy to mount to strike a golf ball. “When we initial came down here for a winter of 2011 we was means to play tennis, float and play golf,” Kennedy said. “Now, we unequivocally can’t play golf all that much. ALS is starting to impact my arms and shoulders. we live on a golf course, so we can golf anytime we want. But now, we strike a ball, lane it with my cart, collect it up, place it with a others and strike it again.”
Kennedy’s diversion these days centers around a experience, some-more than her score.
“Down here we have alligators, herron and eagles on a course,” Kennedy said. “For me, it’s a process. we do this to try to feel normal.”
She did have a best putt during a fundraiser, and there’s video to infer it.”
“I took a integrate of use whacks during it before a TV interview,” Kennedy said. “I never approaching it to go in, though they were means to loop a video during a cooking so everybody could see it.”
Anyone with an internet tie can see a putt, though some-more importantly how to present to assistance find a heal and lift recognition for ALS research.