Maine male hopes to lift supports for ALS home, nonprofit
November 12, 2014 - als
FALMOUTH, Maine — Back when he was a tyro during Falmouth High School, John Gregoire was a two-sport athlete.
The Windham proprietor will be returning to a propagandize Thursday night for a fundraising event, though as a really opposite chairman than when he graduated in 1975.
Gregoire, 58, was diagnosed with ALS in 2007. Short for amyotrophic parallel sclerosis, and ordinarily famous as Lou Gehrig’s disease, ALS stormed to a public’s courtesy this summer with a ice-bucket recognition challenge. It is a neurodegenerative commotion that causes flesh debility and atrophy via a body.
In what he calls “a bit of irony,” Gregoire’s homecoming will be on a seventh anniversary of his diagnosis.
Gregoire, who was a government consultant for 15 years before his diagnosis, now runs a non-profit called a Hope-JG Foundation, that is dedicated to assisting families vital with ALS and other neuromuscular diseases. To do this, a substructure hopes to settle an ALS/MS chateau in Maine, and to enthuse and foster innovative technologies for those with ALS or other neuromuscular diseases.
The residence, that Gregoire pronounced would be modeled after a Leonard Florence Center for Living in Chelsea, Massachusetts, would primarily be a 10-unit house.
Like many influenced by ALS, Gregoire has to use a wheelchair for mobility. His debate is impaired, so when he earnings to Falmouth, he will residence supporters regulating an iPad. The categorical eventuality of a dusk will be a screening of “Hope on a Horizon,” a documentary about hikers who reached a summits of a 48 top peaks in a White Mountains of New Hampshire to lift recognition and appropriation for ALS patients and their families.
Admission to a eventuality is $15 for adults and $10 for students; $30 champion packages are also available, that embody one admission, a substructure T-shirt, and a tradition substructure bracelet. Foundation sell will also be for sale. The eventuality starts during 7:30 p.m.; doors open during 6:45 p.m.
Through email, Gregoire pronounced it was “kismet” that he’ll be returning to Falmouth for this event. He pronounced he reached out to several film theaters for a screening, though found a usually accessibility they had was in a mornings. He pronounced after looking during other venues, he reached out to Falmouth High School comparison Sarah Caldwell, whose father had died from ALS.
“[She] was means to secure a pleasing Performing Arts Center during a propagandize and we’re so vehement and sanctified to be holding an ALS recognition eventuality in a propagandize we graduated from 39 years ago,” Gregoire said.
Gregoire pronounced a concentration of a substructure is that ALS affects a whole family, not only a person.
“Before a categorical event, I’ll be creation some remarks and wish to deliver a video of some of a ALS heroes, some of whom have survived 20 years with ALS,” he said.
The night will also act as a fundraiser, with 100 percent of a deduction going to a Hope-JG Foundation, to be used “to assistance us continue to pull towards a idea of partnering with a like-minded, existent prolonged tenure caring trickery to build an ALS/MS Residence in Maine,” Gregoire said.
Gregoire pronounced there is a need for a long-term caring trickery with entrance to ventilators, and that while it is a “mammoth undertaking” that will “require a right partner and millions of munificent dollars,” it is necessary.
“ALS patients are mostly brilliant, total minds, trapped in a damaged body. There’s no need they should be warehoused and abandoned or worse, confirm not to opening and dive their passing since there is no place for them,” he said. “We honour a really personal preference to opening or not to vent. ALS patients in Maine should have options.”