Man launches petition to support hermit with ALS

January 24, 2015 - als

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About a year ago, Jehad Majed found out his younger brother, Wissam, was diagnosed with Amyotrophic Lateral Sclerosis or ALS, ordinarily famous as “Lou Gehrig’s Disease.”

“Wissam used to work during Chase Bank as a attribute manager and he started carrying difficulty with his right palm coordination,” Majed said.

Eventually, a now 29-year-old saw a chiropractor, acupuncturist and neurologist, a latter of whom diagnosed him with ALS.

“It’s a engine neuron illness that leads to stoppage and eventually death. Right now there’s no heal or diagnosis for it. Toward a finish it hits a lungs, and a normal life outlook is dual to 5 years. It’s flattering most a genocide sentence,” he said.

“My hermit was devastated. He was vexed and anxious, not eating or sleeping. He mislaid 10 pounds in a initial week.”

Almost immediately, Jehad sprang into movement to find out all he could about a illness and what he could presumably do to help.

“My family and we started looking online for something that could assistance him. We attempted steroids, a same ones used for cancer patients, though a side effects were terrible, so we had to stop that,” he said.

Eventually he came opposite a diagnosis called GM604 (aka GM6), made by a biopharmaceutical association called Genervon.

“It’s a illness altering diagnosis that stops a mechanisms causing a damage. So distant they’ve conducted Phase we and Phase II trials, and in both phases it was really safe. In 7 out of 8 patients treated with GM604 a rough clinical measurements of ALS illness course have slowed or stopped,” he said.

The diagnosis is not nonetheless authorized by a FDA, that is because Majed launched a petition on change.org. Continued…

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“We need to put vigour on a FDA to approve this drug,” he said.

Jehad joined his petition with that of Nick Grillo, a 54-year-old ALS studious vital in California.

“It took us a integrate days to learn about any others campaigns and after doing so, we contacted change.org. They related a petitions together so if someone signs one, they automatically pointer a other,” Grillo said.

Another ALS patient, Paul Aiken, a 55-year-old from New York, also champions a treatment.

“GM6 appears to be a game-changer for ALS, and has shown startling formula when given intravenously to ALS and Parkinson’s Disease patients. Unfortunately, official hang-ups competence check capitulation for GM6. Since a life outlook of ALS patients is so low… thousands of people who could be saved by a drug competence die,” Aiken said.

“The petition is related to all U.S. Senators, Representatives, a President of a United States and a ALS Association. So distant there are a small over 74,000 signatures now,” Jehad said.

Today, his hermit is carrying difficulty vocalization and his hands and top arms are weak.

Every 3 months he goes to an ALS hospital during University of Michigan Hospital for checkups.

Wissam, a connoisseur from a University of Michigan-Dearborn, changed from Scottsdale, Ariz. to Dearborn to live with his parents, and took a leave of deficiency from his pursuit during Chase when he was diagnosed.

“He hasn’t left behind since. He used to like producing Electronic Dance Music, though now it’s tough for him to walk,” Jehad said. Continued…

  • 1
  • 2
  • 3
  • See Full Story

About a year ago, Jehad Majed found out his younger brother, Wissam, was diagnosed with Amyotrophic Lateral Sclerosis or ALS, ordinarily famous as “Lou Gehrig’s Disease.”

“Wissam used to work during Chase Bank as a attribute manager and he started carrying difficulty with his right palm coordination,” Majed said.

Eventually, a now 29-year-old saw a chiropractor, acupuncturist and neurologist, a latter of whom diagnosed him with ALS.

“It’s a engine neuron illness that leads to stoppage and eventually death. Right now there’s no heal or diagnosis for it. Toward a finish it hits a lungs, and a normal life outlook is dual to 5 years. It’s flattering most a genocide sentence,” he said.

“My hermit was devastated. He was vexed and anxious, not eating or sleeping. He mislaid 10 pounds in a initial week.”

Almost immediately, Jehad sprang into movement to find out all he could about a illness and what he could presumably do to help.

“My family and we started looking online for something that could assistance him. We attempted steroids, a same ones used for cancer patients, though a side effects were terrible, so we had to stop that,” he said.

Eventually he came opposite a diagnosis called GM604 (aka GM6), made by a biopharmaceutical association called Genervon.

“It’s a illness altering diagnosis that stops a mechanisms causing a damage. So distant they’ve conducted Phase we and Phase II trials, and in both phases it was really safe. In 7 out of 8 patients treated with GM604 a rough clinical measurements of ALS illness course have slowed or stopped,” he said.

The diagnosis is not nonetheless authorized by a FDA, that is because Majed launched a petition on change.org.

“We need to put vigour on a FDA to approve this drug,” he said.

Jehad joined his petition with that of Nick Grillo, a 54-year-old ALS studious vital in California.

“It took us a integrate days to learn about any others campaigns and after doing so, we contacted change.org. They related a petitions together so if someone signs one, they automatically pointer a other,” Grillo said.

Another ALS patient, Paul Aiken, a 55-year-old from New York, also champions a treatment.

“GM6 appears to be a game-changer for ALS, and has shown startling formula when given intravenously to ALS and Parkinson’s Disease patients. Unfortunately, official hang-ups competence check capitulation for GM6. Since a life outlook of ALS patients is so low… thousands of people who could be saved by a drug competence die,” Aiken said.

“The petition is related to all U.S. Senators, Representatives, a President of a United States and a ALS Association. So distant there are a small over 74,000 signatures now,” Jehad said.

Today, his hermit is carrying difficulty vocalization and his hands and top arms are weak.

Every 3 months he goes to an ALS hospital during University of Michigan Hospital for checkups.

Wissam, a connoisseur from a University of Michigan-Dearborn, changed from Scottsdale, Ariz. to Dearborn to live with his parents, and took a leave of deficiency from his pursuit during Chase when he was diagnosed.

“He hasn’t left behind since. He used to like producing Electronic Dance Music, though now it’s tough for him to walk,” Jehad said.

People competence also be informed with a illness after saying a film “The Theory of Everything,’ about physicist and cosmologist Stephen Hawking, who during a age of 73, is one of a oldest vital flourishing patients with ALS. He’s been wheelchair-bound given a 1960s, and mislaid his ability to pronounce in 1985. He now communicates by a digital voice synthesizer.

Jehad is anticipating his brother’s story will assistance motivate people to pointer his petition, that can be found during http://tiny.cc/60rdsx.

“Help me save my hermit and a thousands of people pang from this disease. Please forward, share, and repost to as many people as we can, and assistance us get a word out,” he said.

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