Man with ALS longs to see new ‘Star Wars’
November 30, 2015 - als
NASHVILLE — Just about all in Nathan Ashley’s physique has stopped working, but it’s not interlude him.
Ashley was diagnosed with amyotrophic parallel sclerosis — known as ALS or Lou Gehrig’s illness — in May 2013.
His mom of 5 years, Kathleen Ashley, must use a lift to get him in and out of bed, like stealing an engine retard from a car. She gives him his remedy — some any 4 hours, others any eight, others once a day — and suctions a tubes Nathan Ashley uses to breathe. If he wants to pierce his arms or legs, she does it for him.
The integrate has tickets to see Star Wars: The Force Awakens, the newest installment of a film franchise set to entrance Dec. 18. Nathan Ashley’s adore of Star Wars started when he was young: His mom bought him an R2-D2 transformation figure when he was about 5. Soon a family rented a strange movie, and his eyes stranded on a domed droid. It grew from there.
“When a tickets came on sale, we bought some, and we said, ‘Honey, we got a tickets, we’re going to see Star Wars,'” Kathleen Ashley said. “He only started crying. He said, ‘I’m not going to be means to go.'”
Nathan Ashley’s health has gotten worse: Even sitting in his wheelchair has turn too painful, and so he stays in bed. A new doctor’s revisit resulted in orders for some-more visit suctioning. Going to a film museum is scarcely impossible.
Kathleen Ashley and a crony motionless to emanate a video, anticipating it would go viral, seeking Hollywood to let Nathan Ashley, 34, watch a film during home.
The thought had worked before: The film makers authorised a Texas male with depot cancer to see a chronicle of a movie earlier this month after a amicable media debate widespread around a world. That man, Daniel Fleetwood, died days later.
The Ashleys’ video has nearly 7,000 views given it was posted Nov. 22. There’s a Facebook group and people are posting so most on Twitter using #TFAforNathan, some have been put in timeout for overtweeting to celebrities.
Nathan and Kathleen Ashley married in May 2010, on a day torrential sleet brought inauspicious flooding to Nashville. They now share a renovated bedroom at Kathleen Ashley’s parents’ residence in La Vergne. Their marriage cinema are on a walls: He’s station beside her, with his arms wrapped around here; in another, they’re walking down a Nashville street.
He can’t do those things anymore.
On her bedside list is a Yoda doll wearing a Santa hat. On his bedside list are machines that keep him alive. There’s a Star Wars sweeping on a bed and a Death Star finished of Legos on a shelf.
And yet they to wish to see a seventh film in a approach that does not harm Nathan Ashley, a Ashleys’ amicable media debate has another benefit.
“When he got diagnosed, he pronounced he wants to be means to assistance other people by this journey,” Kathleen Ashley said.
Nathan Ashley can pierce his lips and eyes. He smiles when a couple’s 1-year-old dog prances around on a bed. He can't talk, though Kathleen Ashley can review his lips. He uses a mechanism that marks his eye transformation to form out words, that a mechanism afterwards verbalizes.
“At first, being told you’re failing and there is zero that can be done, it’s a outrageous shock,” Nathan Ashley pronounced by a computer. “And with any change it’s like being told all over again. So now that only about all has stopped working, my faith is being tested though not shaken. Like I’ve said, we will kick this or reason on until a heal is found. This is not how we am ostensible to live and we will travel again.”
Nathan Ashley moved his lips.
“What?” Kathleen Ashley asked. She review his lips:
Follow Stacey Barchenger on Twitter: @sbarchenger
How to help
Want to assistance support Nathan Ashley’s ask to see Star Wars: The Force Awakens in his home? Tweet regulating #TFAforNathan, or find their page on Facebook: Walking by Faith for Nathan Ashley.