New drug shows earnest formula for ALS treatment

March 12, 2015 - als

AT THE TIME. NBC NIGHTLY NEWS WILL UPDATE THE SEARCH AFTER NEWS 8 AT 6:00. TONIGHT IS AN WILL ON YOUR SIDE TEAM. THE ONE DRUG USED TO TREAT ALS MAY ONLY PROLONG LIFE FOR A FEW MONTHS. A SMALL PHARMACEUTICAL COMPANY DEVELOPED A NEW DRUG THAT SHOWS PROMISE. A LEBANON COUNTY PATIENT AND HIS FAMILY ARE FIGHTING TO MAKE IT AVAILABLE AND FAST. THE FORMER MARINE IS TRAPPED IN A WEAKENING BODY HIS FAMILY DESCRIBES AS A LIVING TOMB. HE WAS DIAGNOSED TWO YEARS AGO WITH ALS, A MOTOR NUR ON DISEASE THAT AFFECTING MUSCLE MOVEMENT. HE COMMUNICATES USING HIS iPAD. WHAT IS THE TOUGHEST PART OF HAVING THIS DISEASE? we GOT IT. NOT BEING ABLE TO PARTICIPATE. BUT RON’S FOUR DAUGHTERS ARE PARTICIPATING IN A NATIONWIDE FIGHT. THEY ARE AMONG TENS OF THOUSANDS THAT SIGNED A PETITION ON CHANGE.ORG URGING THE FOOD AND DRUG ADMINISTRATION TO GIVE ACCELERATED APPROVAL TO A DRUG KNOWN AS GM6. THE MAKER REPORTED PROMISES RESULTS IN SMALL CLINICAL TRIALS. IF HE WANTS TO TRY IT AND GIVE HIMSELF A CHANCE, we WANT HIM TO TRY IT. FAMILY OF THE PATIENTS HAVE TO SPEAK OUT. THE ALS ASSOCIATION THAT RECEIVED A LOT OF ATTENTION DURING THE ICE BUCKET CHALLENGE HAS NOT SIGNED THE PETITION BUT SAYS IT SUPPORTS THE FAMILY’S RIGHT TO CHOOSE A TREATMENT AND WOULD NOT INTERFERE WITH IT. RON’S WIFE OF ALMOST 50 YEARS IS HIS PRIMARY CAREGIVER. HE WANTS TO HELP AND DO THINGS BUT HE CAN’T. IT’S HARD. RON TAKES ALMOST A DOZEN MEDICATIONS EVERY DAY BUT IT’S JUST TREATING THE SYMPTOMS OF THE ALS AND HIS WIFE HAS TO DO THIS TO CRUSH UP THE PILLS TO PUT INTO THE FEEDING TUBE. BUT HE WOULDN’T MIND TAKING ANOTHER ONE IF IT WOULD HELP THIS DEBILITATING DISEASE. NEWS 8. THE FOOD AND DRUG

source ⦿ http://www.wgal.com/news/new-drug-shows-promising-results-for-als-treatment/31744844

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