New Non-profit Aims to Build ALS Residence in Hawai’i

September 3, 2017 - als

Robert Lundy is a Marine maestro from Hawai‘i Island vital with ALS. There is no famous means or heal for a disease. Photo pleasantness of ALSFH.

The ALS Foundation of Hawai‘i (ALSFH), a grassroots classification that is partial of a national beginning to settle ALS residences, announced it has perceived IRS capitulation as a 501(c)3 standing nonprofit.

ALSFH is focused on formulating a Hawai‘i ALS Residence as partial of a ALS Residence Initiative (ALSRI), a transformation shaped to assistance states set adult specialized homes to caring for persons influenced by ALS.

ALS—or Amyotrophic Lateral Sclerosis, also famous as Lou Gehrig’s Disease—deteriorates a body’s shaken system, digest a muscles indispensable to speak, breathe, travel and eat immobile. Those influenced are eventually inept and need continual care. Though incompetent to move, aloft mind functions such as meditative and sensations sojourn intact. Most patients die within 3 to 5 years of diagnosis; roughly 20 percent live over 5 years. There is no famous means or heal for ALS.

“Being sealed in a physique that doesn’t work is scary,” pronounced Robert Lundy, a Marine maestro with ALS from Hawai‘i Island. “A chateau that can assistance us duty exclusively and concede a families some-more options for remit creates me feel some-more hopeful.”

An estimated 29 new cases of ALS are diagnosed in Hawai‘i each year. Currently, there are 90 famous cases of a illness by a state.

The ALSFH will horde a initial open eventuality on Wednesday, Sept. 6, during 5:30 p.m. during a Central Seventh-day Adventist Church in Honolulu. Guest orator Peter Quortrop, a nonprofit owner who leads a ALSRI bid in Texas, will pronounce on a significance of ALS-tailored residences for Hawai‘i and lessons schooled from Texas’s singular experience. Interested persons on Hawai‘i Island might perspective a giveaway eventuality around videoconference from West Hawai‘i Community College’s Palamanui campus in Kailua-Kona. Heavy pūpū will be served during both locations.

Attendees of a eventuality are asked to RSVP by Monday, Sept. 4. For some-more information, hit Divina Robillard during (808) 256-3932 or email

Steve Saling started ALSRI in 2012 after visiting persons with ALS vital in nursing homes.

”I detected because a measly 5 percent of people with ALS select to use a ventilator to lengthen their lives,” he said. “Our multitude treats prisoners with some-more grace and honour than a chronically disabled, kept alive though with no life.”

Three states now have ALS specialty caring residences: Massachusetts, Louisiana and Georgia. Texas, Maine and Maryland have determined nonprofits operative for a origination of these residences.

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