North Madison firefighter with ALS hurdles Jimmy Fallon
August 29, 2015 - als
MADISON Efforts are underneath approach to titillate “Tonight Show” horde Jimmy Fallon to accept Amanda Bernier’s defence to attend in a 2015 Ice Bucket Challenge.
Bernier, inept by ALS, urged Fallon to a 2015 Ice Bucket Challenge as a pitcher of ice cubes is poured into her path on a video posted to Bernier’s Amanda’s Angels ALS Facebook page.
One day later, on a morning of Aug. 26, NBC Connecticut contributor Abbey Niezgoda interviewed Bernier and her husband, Chris, expressing seductiveness in assisting a integrate strech out to Fallon. Niezgoda pronounced she forwarded her story to Fallon. The ShoreLine Times reached out to Fallon around email.
“Your essay contingency have held a courtesy of NBC given they showed adult during a doorway wanting to assistance me to get Jimmy Fallon to do a IBC,” writes Amanda Bernier in an email to a ShoreLine Times, that posted an progressing story on shorelinetimes.com. No member from Fallon’s bureau had nonetheless returned calls or emails.
Amanda Bernier acknowledges Fallon and others “from any facet of my life,” observant “thank we for creation me grin any night by this journey.”
“We always watched him by ‘Saturday Night Live’ and afterwards his late uncover and now a ‘Tonight Show,’” says Chris Bernier. “We chose to concentration on a certain things via this knowledge … So Amanda had always pronounced that it’s good to be means to put a grin on your face, have a grin before we go to bed.”
The 1-minute, 17-second video shows Amanda Bernier, 31, sitting in her wheelchair, with her respirating apparatus subsequent to her and her 9-month-old daughter, Arabella Grace, personification during her feet in a kiddie pool.
ALS is a on-going neurodegenerative illness that causes a decrease of engine neurons. Amanda has a many assertive form of ALS and is chronicling her tour by minute posts to Facebook.
Many in Madison know her from her pursuit as a North Madison firefighter, alongside her husband, who is also a EMS executive during a Madison Emergency Medical Services.
“A year ago currently was a final time we spoke. It was a final time we smelt. It was a final time we took a exhale on my own,” she wrote on Aug. 21. “A year ago, we got my trach and went on a ventilator.”
On a video, she is candid about her diagnosis.
“I was diagnosed dual weeks after anticipating out we was pregnant. we went from using races, operative full time during a lab and firefighting to not being means to pierce anything and on a ventilator in 5 months,” she says. “But interjection to your prayers we delivered a healthy baby and we am still alive.”
After reading a ShoreLine Times story online about her video, Amanda Bernier writes in an email, “Thank we for essay a story to assistance me widespread awareness.
“However we do not see myself as newsworthy,” she adds. “I am only another chairman going by life.”
Amanda Bernier is means to promulgate interjection to an eye tracker module donated by Team Gleason that works with her Windows tablet. Team Gleason is an classification that “is partnering with heading record companies to squeeze eye tracking unstable computers in bulk.”
The Internet is filled with ALS Ice Bucket Challenge videos display friends, colleagues, family and neighbors willingly being doused with a bucketful of bitterly cold H2O and severe others to do a same or make a concession to assistance heal ALS.
To date, some-more than $100 million has been lifted to quarrel ALS. Bernier hopes a income will assistance destiny generations, like her daughter, Arabella.
The former firefighter encourages others to attend in this defence to lift supports for dual organizations, ALS TDI and Team Gleason, who are assisting her with this journey.
ALS TDI is concerned with ALS research.
Teamgleason.org is named for football actor Steve Gleason, a member of a New Orleans Saints from 2000-08 who was diagnosed with ALS in Jan 2011.
Amanda Bernier creates a defence on her Facebook page: “Please present to assistance save a life. It might be too late for me, though it’s not too late to assistance my baby lady if she were to get ALS given she unfortunately has a same 50 percent possibility of removing it like we (did).”
Writing on her Facebook page, Bernier pronounced “When we was really young, my mom said, ‘When we are comparison there will substantially be a shot so we don’t have to worry about removing ill like your grandma (and herself).’ So greatfully assistance me in my quarrel to make that ‘shot’ a existence for my daughter and all of a unborn destiny ALS patients.”