One Man Makes a Difference with ‘ALS One’

January 26, 2016 - als

When a deadly illness like ALS comes into your life we have dual choices. You can accept a diagnosis and wait to die or we can use all you’ve got to fight. Fight for yourself and quarrel for others. My father and partner Randy Pipkin chose a latter. After battling a illness for 9 years, he died in 2014 during a age of 41.

When Kevin Gosnell was diagnosed with ALS in open 2015, he also chose to fight. A successful businessman and father of 3 boys, Kevin immediately put his business astuteness and CEO caring skills to work to come adult with an thought – ALS ONE. It is a elementary thought with one idea – to assemble a best minds in a ALS village to work together to assist swell toward anticipating a heal and improving care. This week ALS ONE rigourously launches in Boston with a idea of anticipating a diagnosis within 4 years.

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Kevin Gosnell and his mother and caregiver Kathy

“My nana Gosnell always said, ‘many hands make light work’ and as a tiny business CEO, I’ve lived by these disproportion and always believed in a energy of a team,” pronounced Kevin. “When we was diagnosed with ALS final spring, we was sad by a miss of partnership in a margin of ALS and motionless to dedicate my remaining time to assistance build a group of a tip ALS experts here in Massachusetts, a medical heart of a world, to assist swell toward anticipating a treatment.”

An rare partnership of heading neurology experts and caring specialists, ALS ONE is done adult of a ALS Therapy Development Institute, Massachusetts General Hospital (MGH), UMass Medical Center and Compassionate Care ALS (CCALS). Through ALS ONE, these institutions are leveraging a strengths of their princely institutions to assist swell toward anticipating a diagnosis within a subsequent 4 years. ALS ONE will concurrently work to urge a caring indication for persons vital with ALS and their families.

“ALS is an intensely underfunded illness in dual areas: caring and research. ALS patients need some-more entrance to clinics, record and caring services to safeguard they can live their best life. We are on a fork of investigate breakthroughs, and distillate income will assistance us find an effective treatment” pronounced Dr. Merit Cudkowicz, MD, MSc, Professor of Neurology, Harvard Medical School and Director, MGH Chief of Neurology. “Through ALS ONE, operative together with Bob Brown and his group during UMass Medical Center alongside Steve Perrin and his group during ALS Therapy Development Institute and Ron Hoffman of CCALS, we are assured that we will accelerate swell to find a diagnosis and urge caring for a ALS community.”

The ALS village has been historically fragmented, so a idea of ALS ONE is to precedence a imagination from any of a investigate institutions by a pity of ideas and responsibilities to allege a strongest healing opportunities. This ideally will assistance discharge nonessential duplication and assist a trail to find an ALS treatment. At a same time, ALS ONE is also operative to urge caring for people with ALS by formulating some-more entrance to clinical trials by preparation and travel as good as providing technology, apparatus and support services.

Through ALS ONE, Kevin Gosnell proves that one male can make a difference. His work only competence be a tipping indicate to assistance eventually lead to a genuine diagnosis for ALS. In a future, ALS ONE will hopefully be famous as “ALS DONE.” I, for one, wish to see that day. For some-more information on ALS ONE, revisit www.ALSONE.org.

source ⦿ http://www.huffingtonpost.com/mark-malinowski/one-man-makes-a-different-with-als-one_b_9011750.html

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