Pasadena advantage honors people vital with ALS, documentaries on … – KABC

August 16, 2016 - als

A advantage was hold in Pasadena Monday night to respect documentaries on and people with Amyotrophic Lateral Sclerosis, some-more ordinarily referred to as ALS.

As a New Orleans Saint, Steve Gleason represented scarcely ideal earthy fitness, though all of that altered when he was diagnosed with ALS.

Gleason’s diagnosis came only weeks before his mother Michele detected that she was pregnant. He afterwards began a video record for his new son. Those videos are now partial of a documentary “Gleason,” that is in theaters now.

Director Clay Tweel pronounced a documentary shows a “triumph of a tellurian spirit.”

“You’re examination a male remove his abilities and remove his engine skills, while his son is on a other side and he’s gaining his abilities,” Tweel said.

“Gleason” is one of a honorees during “One Starry Night,” a advantage for a ALS Golden West Association.

About 14 million people finished a ice bucket plea in 2014 to lift income and recognition for ALS. The viral videos helped lift some-more than $115 million, and that income recently led to a find of 3 new genes.

In 2014, Eyewitness News profiled Pilates guru Mari Winsor shortly after her diagnosis. At a benefit, Winsor done an coming and stays upbeat.

“I still am means to be with a male we adore and to do what we adore to do,” she said.

Apple Valley proprietor Dominic Cumo is 12-years-old and lives with ALS. But his sign is to never give up.

“I know someday they will find a heal for this,” he said.

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