Plainview local blazes route for ALS patients
July 8, 2017 - als
A Plainview local battling Amyotrophic Lateral Sclerosis, or ALS, is operative by a final 600 miles of a Appalachian Trail to lift recognition and income for a disease.
Rick Marks, a Texas Tech graduate, has always been a hiker and ubiquitous outdoorsman, pronounced Eileen Marks, Rick’s wife. He’s climbed many of a plateau in a segment around Massachusetts, where his family lives.
“He always wanted to travel a Appalachian Trail,” Eileen said. “When he retired, he was formulation on doing tools of it.”
Since Rick was diagnosed in October, she said, skeleton changed. It was a startle to a integrate and their dual sons, Philip and Henry.
ALS, also famous as Lou Gehrig’s disease, is a on-going neurodegenerative illness that affects haughtiness cells in a mind and spinal cord, according to a ALS Association. There is no cure.
Greta Marks, Rick’s mother, pronounced her son initial started exhibiting symptoms final summer.
“It started with his speech,” she said. “(It) was harder for him to pronounce and it was slower.”
Rick, creatively of Plainview, can no longer speak as a outcome of a course of a disease, Greta said. The muscles on a left side of his physique and his neck have also turn really diseased and he has small balance.
He schooled of ALS ONE when he was diagnosed. ALS ONE is a partnership between experts during ALS Therapy Development Institute, UMass Medical School, Massachusetts General Hospital and Compassionate Care ALS with a common idea of anticipating a heal for ALS by 2020, according to a ALS ONE website.
“This is a illness that doctors feel assured they can find a heal for if they had money,” Eileen said.
Rick wanted to assistance “while we still can,” according to his blog, “Rick’s Hike for ALS.” He hoped to lift $50,000 for ALS ONE. As of Thursday morning, his debate had lifted $69,057 of a new $75,000 goal. There are still 85 days left to present during www.firstgiving.com/alsone/Ricks
“I don’t wish one some-more family to have to go by what we are experiencing and what so many others have before us,” Rick’s blog reads.
Rick’s employer, Bank of America, postulated him an eight-week leave of absence, according to his blog. He and crony Ted Kellogg started on a travel by a 600-mile widen of a Appalachian Trail that goes from Massachusetts to Maine, where they’ve been intermittently assimilated by some-more friends, Didier Collin de Casaubon and his son Matthieu.
Rick, a Monterey High School graduate, hopes to finish a travel by Aug. 6, Eileen said.
As word of his means spreads along a route and beyond, so does a support, she said.
Countless people have donated supplies, aided Rick and his hiking buddies along a route and donated to ALS ONE, Eileen said.
The Appalachian Trail is rough, she said, and a illness has done Rick extremely diseased though he’s pulling through.
“Yesterday (Wednesday) we hiked over 11 miles adult and down all day,” Rick pronounced in an emailed matter to A-J Media. “Very high in a morning and challenging. We arrived late in a day since we am slower, though my AT hiker friends were blissful to see me.”
He’s already had to take a few breaks from a route and will have to skip certain tools of it. But people have stepped in and affianced to travel it in his name.
A organisation of thru-hikers — people who try to travel a whole 2,190 miles of a route from Georgia to Maine all during once — nicknamed Rick “Steady.” Those people and a friends he’s roving with have been easy him along a trail, that Rick pronounced is gratifying.
“When (we) arrive during a subsequent shelter, we have friends on a route and they assistance me make certain we have a place to stay in a shelter,” Rick wrote in a email.
Greta Marks pronounced she’s grateful so many people are looking out for her son.
“People are good and good and helpful,” she said. “And his friends who are with him, they are only tremendous. It’s only extraordinary that these good friends of him are carrying many of his load.”
It’s misleading either Rick will be means to make his idea and travel a whole route by a commencement of August, though Greta pronounced his categorical concentration is lifting recognition so a ALS investigate village can get closer to a cure.
“I’m really unapproachable of him,” Greta said. “He’s my hero. He’s really bold to try this. This is a tough route for people who are well. It’s a plea for anybody and positively for him.”