Texas ALS Patient Wants ‘Ice Bucket’ $ To Go To Research

September 11, 2014 - als

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NORTH TEXAS (CBS 11 NEWS) – Marcie Gibson’s bedroom is still only for a soft, consistent pulses of atmosphere relocating from her respirator and a electronic ticking as she typed on her word processor.

Eye tracking record allows Gibson to use a usually physique partial she can to type.  Much like on a touchscreen, any time her mechanism recognizes a minute it creates a noise;  Tick.  Tick.  Tick.

Gibson is totally inept by ALS and lies in her wheelchair, with her specialized mechanism dangling in front of her. The record allows her solemnly form out her thoughts.

North Texan Marcie Gibson has ALS and is campaigning to have all Ice Bucket Challenge income go to research. (credit: Joel Thomas/CBS 11 News)

North Texan Marcie Gibson has ALS and is campaigning to have all Ice Bucket Challenge income go to research. (credit: Joel Thomas/CBS 11 News)

From her still bedroom Gibson wants to start a inhabitant debate to ask a ALS Association (ALSA) to spend a some-more than $100 million lifted from people holding a Ice Bucket Challenge only on research.

“ALS patients would advantage from a research,” Gibson typed out.  “With this volume of income we never know what competence come out of it.  Plus, people trust their donations are going 100 percent to research.”

The ALS Association’s website shows reduction than a third of donations indeed goes to research.  The infancy of supports go to other ALS services.  Gibson began a debate on ALSA’s Facebook page seeking them to dedicate all a Ice Bucket deduction to research.

“And we am seeking others to post also, to convince them [ALSA] to put all Ice Bucket Challenge [money] into research,” Gibson said.

Tanner Hockensmith, a Executive Director of a ALS Association Texas Chapter, pronounced a classification does a lot of things – including outfitting patients with wheelchairs and computers, handling clinics and augmenting awareness.

“The Association will positively be means to deposit some-more dollars into research, though we will also stay committed to a goal and yield caring for those vital with this disease,” Hockensmith said.

Still, only how many of a Ice Bucket Challenge income goes into investigate is adult in a atmosphere and Gibson hopes her debate will drive a income toward research.

“ALSA is observant they contingency confirm where a income would have a many impact,” Gibson wrote.  “Finding a heal would have a flattering good impact.”

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