US Law Ensures Funding of Speech-Generating Devices for ALS Patients
February 15, 2018 - als
The United States has enacted legislation to safeguard permanent appropriation of speech-generating inclination that concede people with degenerative diseases such as ALS to communicate.
Both houses of Congress unanimously authorized a strange chronicle of a Steve Gleason Act that was enacted in 2015 though set to end this year. The prolongation legislation became law this month.
The legislation was named after Steve Gleason, a former veteran football actor with ALS who lives in New Orleans. He played for a New Orleans Saints from 2000 to 2008. Many fans remember him for a argent opening in a initial diversion in a reopened Louisiana Superdome after Hurricane Katrina.
He became a outspoken believer of a legislation, that requires Medicare to compensate for a communication inclination and accessories of people who need them to communicate, either they live during home or in a medical facility.
The Gleason Act was partial of a $400 billion check bill that increases spending on troops and domestic programs.
Gleason, who done his ALS diagnosis open in 2011, uses a speech-generating record himself. People with ALS are not a usually ones who count on eye-tracking and voice-generating record to communicate. Gleason remarkable in a news story written by Maria Clark that a “silence and siege that comes from losing a ability to promulgate does not distinguish between forms of injuries, diseases, accidents, or conditions.”
Gleason started a Keep My Voice campaign to assistance ALS patients run Congress on a prolongation legislation. The debate combined a call core that authorised patients to make robocalls to Congress, regulating a same record they were during risk of losing.
“Most people who have serious disabilities are approaching to blur divided sensitively and die,” Gleason said. “For me, that was not OK. With a right apparatus and a right technology, a same people can live and be prolific for decades.
“I trust a republic has a infrastructure and supports to yield record for people who truly have no other voice,” he said. “This is not an desert bill. It’s an empowerment check for people who wish to be prolific citizens.”
Read some-more about Gleason’s advocacy work and his substructure here.
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