Vitter Introduces Bipartisan Steve Gleason Act of 2015 to Help ALS Patients
January 31, 2015 - als
(Washington, D.C.) – U.S. Senator David Vitter (R-La.) currently introduced a bipartisan Steve Gleason Act of 2015 in a U.S. Senate to assistance patients diagnosed with diseases such as Amyotrophic parallel sclerosis (ALS) like Steve Gleason, former veteran football actor with a New Orleans Saints, live some-more eccentric lives. Vitter’s check is co-sponsored by Senators Amy Klobuchar (D-Minn.) and Angus King (I-Maine). Congresswoman Cathy McMorris Rodgers (R-Wash.) is introducing a messenger check in a House of Representatives along with strange co-sponsors Congressmen Steve Scalise (R-La.) and Erik Paulsen (R-Minn.). The legislation is permitted by Steve Gleason’s advocacy organization, Team Gleason, a ALS Association, a American Speech-Language Hearing Association, Center for Medicare Advocacy, a American Occupational Therapy Association, and a United Spinal Association.
“Steve Gleason has given wish to patients with ALS and other debilitating diseases opposite a country. Through his efforts and a extensive work of Team Gleason, folks with these forms of disabilities are vital fuller, some-more eccentric lives,” Vitter said. “Our legislation gives us a event to extend those efforts in a approach that empowers ALS patients opposite a country. Steve’s new revisit to Washington gave us outrageous movement with a colleagues in Congress and with a Administration for relocating this vicious legislation.”
“Steve’s summary has always been ‘until there is a medical heal for ALS and other debilitating diseases, record can be that cure’. This legislation provides indispensable changes to stream process that will give behind some of what these diseases take away. Steve is respected to have his name trustworthy to this vicious work, though many importantly, shamed to be a voice for so many who are fighting to be heard,” pronounced Clare Durrett, Associate Executive Director of Team Gleason.
“Steve Gleason’s story and his advocacy on interest of those influenced by serious disabilities like ALS offer as an impulse to all Americans,” Scalise said. “I’m respected to join Steve, Sen. Vitter, and Reps. McMorris Rodgers and Paulsen in a quarrel opposite ALS. Debilitating diseases like ALS do not have to meant defeat, and a Steve Gleason Act of 2015 brings about much-needed reforms to assistance yield some-more autonomy to those with disabilities who are seeking treatments, cures and opportunities. we am unapproachable that House and Senate Republicans are ordering to champion this vicious square of legislation for those who exclude to let a illness like ALS conclude them.”
The Steve Gleason Act of 2015 would make a following reforms:
· Gives evident service for patients who have been denied entrance to debate generating inclination (SGDs) given a Administration’s order change in 2014
· Ensures SGDs are personal as medically required and are categorized as “routinely purchased” underneath Medicare
· Reverses a Centers for Medicare Medicaid Services (CMS) capped let process to concede patients to possess their inclination and continue regulating them in comforts such as nursing homes
· Ensures eye tracking record and gawk communication accessories are lonesome underneath Medicare for ALS patients with demonstrated medical needs. NOTE: this is how Gleason is means to verbally communicate.
Vitter worked with Team Gleason final year to vigour CMS to rescind a designation that singular entrance for certain medical equipment, including a debate generating device that Gleason uses.
In a 113th Congress, Vitter along with Senator Chuck Schumer (D-N.Y.) introduced bipartisan legislation, a Ensuring Access to Quality Complex Rehabilitation Technology Act, that would emanate a apart advantage difficulty for Complex Rehab Technology (CRT), such as a energy chair or debate devices, within a Medicare program. Click here to review more.
Gleason was diagnosed with ALS in Jan 2011. He has given been cramped to a circle chair and mislaid his ability to speak. Gleason’s debate generating device has authorised him to recover his ability to communicate. Team Gleason has worked to yield people with neuromuscular diseases with heading corner record and emanate a tellurian review about ALS to eventually find effective diagnosis and a cure.
Earlier this month, Gleason came to Washington D.C. as Vitter’s guest to a State of a Union. Vitter and Team Gleason met with U.S. Department of Health and Human Services Secretary Sylvia Burwell to plead ALS legislation. Click here to review more.